What is von Hippel-Lindau Disease? One Patient's VHL Story - The VHL Alliance
- Published on: Wednesday, September 9, 2009
- A Comcast Newsmaker interview with Jeannie McCoy, former board member of the VHL Alliance, about her and her family's experience with Von Hippel Lindau disease.
What is VHL? VHL (von Hippel-Lindau) is a genetic condition involving the abnormal growth of blood vessels in up to 10 parts of the body. Patients battle a series of tumors throughout their life. The VHL Alliance is the leading funder of VHL research, identifying new treatments for VHL and related cancers.
Learn more at vhl.org
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